Mt Sinai Hospital in NYC is the best.....You need to find a lung dr (pulmonolgist) that has seen it before. They treat your symptoms, usually with prednisone. There is NOT a Sarc Dr ...you have to go to the dr where your symptons are occuring. (heart dr if it is affecting your heart ..etc...)Mt Sinai has a sarc center for a second opinion. Might be worth the trip...
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